Experiences of Living with Dysphagia in Stroke Patients
Keywords:
Community-based rehabilitation, Patient experience, Stroke patients, DysphagiaAbstract
Dysphagia is a common complication among stroke patients. This condition affects daily activities and quality of life. Individuals with swallowing difficulties are at increased risk of aspiration and may develop aspiration pneumonia. This qualitative study aimed to explore the experiences of stroke patients living with dysphagia in a hospital in Songkhla Province, Southern Thailand. Data were collected through in-depth, semi-structured interviews with two groups of stakeholders: patients and caregivers, totaling 12 participants, selected using purposive sampling. Interviews continued until data saturation was achieved, and the data were analyzed using content analysis. The study findings revealed four themes regarding the experience of living with dysphagia among stroke patients: (1) dysphagia as profound suffering and a cause of changes in family life, (2) family involvement and organizational support, (3) restoration of identity and social roles, and (4) obstacles to rehabilitation among dysphagia patients. The findings suggest that the data can inform policy development for stroke patients with dysphagia. Additionally, community services should be developed, along with telephone or application-based counseling, to increase the continuity and effectiveness of rehabilitation, and be based on consideration of the individual needs of patients, the readiness and capabilities of their families, and the resources of healthcare facilities to ensure effective and sustainable rehabilitation outcomes.
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